Würzburg: EU project JARDIN promotes diagnosis of rare diseases
From 12 to 14 November 2025, experts from Latvia, Austria and Romania met with experts from the Centre for Rare Diseases – Reference Centre Northern Bavaria (ZESE) in Würzburg. The aim of the meeting, which was part of the EU project JARDIN, was to improve the diagnosis of rare diseases in the participating countries and to promote the integration of the European Reference Networks (ERNs) into national health systems.
JARDIN aims to make the specialized competencies of the ERNs more accessible to patients with rare and complex diseases. As part of a twinning project, the guests exchanged ideas with the Würzburg team to develop strategies to better support those affected with an unclear diagnosis. This resulted in a pilot project: In the case of diseases that cannot be clearly clarified nationally, European expertise is to be used to enable a diagnosis.
The ZESE at the University Hospital Würzburg serves as an interdisciplinary contact point for those affected and those treating them. If the diagnosis is known, it provides therapy options, and in unclear cases, it supports clarification. The exchange strengthens cooperation and could sustainably improve the care of rare diseases in the participating countries.
Editor: X-Press Journalistenbüro GbR
Gender Notice. The personal designations used in this text always refer equally to female, male and diverse persons. Double/triple naming and gendered designations are used for better readability. ected.
Most read
Interview with Dr. Jakob Adler on the EU AI Act: “The evaluation of the ever-increasing amounts of data will change our view of diseases” He is considered the father of the "Digital Competence and Artificial Intelligence (AI)" section of...- World’s first shunt operation with microsurgical robotic system at the UKSH At the University Medical Center Schleswig-Holstein (UKSH), Kiel Campus, a shunt operation was perfo...
- MEDICA 2025 and COMPAMED 2025 start in Düsseldorf As of today, the Düsseldorf Exhibition Centre will become the centre of the international healthcare...
